Skip to content

Study

Attribute: Study Data Use Codes

Valid Value Description
IRB This data use modifier indicates that the requestor must provide documentation of local IRB/ERB approval.
HMB This data use permission indicates that use is allowed for health/medical/biomedical purposes; does not include the study of population origins or ancestry.
PUB This data use modifier indicates that requestor agrees to make results of studies using the data available to the larger scientific community.
US This data use modifier indicates that use is limited to use by approved users.
NPOA This data use modifier indicates use for purposes of population, origin, or ancestry research is prohibited.
COL This data use modifier indicates that the requestor must agree to collaboration with the primary study investigator(s).
NCU This data use modifier indicates that use of the data is limited to not-for-profit use.
NPUNCU This data use modifier indicates that use of the data is limited to not-for-profit organizations and not-for-profit use, non-commercial use.
RS This data use modifier indicates that use is limited to studies of a certain research type.
TS This data use modifier indicates that use is approved for a specific number of months.
NRES This data use permission indicates there is no restriction on use.
NPU This data use modifier indicates that use of the data is limited to not-for-profit organizations.
DUM Data use modifiers indicate additional conditions for use.
POA This data use permission indicates that use of the data is limited to the study of population origins or ancestry.
MOR This data use modifier indicates that requestor agrees not to publish results of studies until a specific date.
GSO This data use modifier indicates that use is limited to genetic studies only (i.e., studies that include genotype research alone or both genotype and phenotype research, but not phenotype research exclusively)
RTN This data use modifier indicates that the requestor must return derived/enriched data to the database/resource.
CC This data use modifier indicates that use is allowed for clinical use and care.
NMDS This data use modifier indicates that use does not allow methods development research (e.g., development of software or algorithms).
IS This data use modifier indicates that use is limited to use within an approved institution.
GS This data use modifier indicates that use is limited to within a specific geographic region.
DS This data use permission indicates that use is allowed provided it is related to the specified disease.
GRU This data use permission indicates that use is allowed for general research use for any research purpose.
PS This data use modifier indicates that use is limited to use within an approved project.

Attribute: Study De-identification Method Type

Valid Value Description
Manual nan
Semiautomatic nan
Automatic nan
Not Applicable nan

Attribute: Study License

Valid Value Description
CC BY 3.0 http://creativecommons.org/licenses/by/3.0/
CC BY 4.0 https://creativecommons.org/licenses/by/4.0/
CC BY-NC 4.0 https://creativecommons.org/licenses/by-nc/4.0/
CC BY-NC 3.0 https://creativecommons.org/licenses/by-nc/3.0/

Attribute: Study Index Date

Valid Value Description
Diagnosis Date nan
Enrollment Date nan
Collection Date nan
Birth Date nan